January 7th I’m scheduled for my first round of PRRT. I’ll be radioactive girl for 3 days after! I have to stay away from people, kids, and pets for that time. I can be around adults, for short periods but not pregnant women! I’ve decided it’ll be easier to have my sister stay here with my dogs, cat and fishies rather then find people to watch them. I’m going to go stay at a hotel. It’ll be a mini-vacation! I just hope I feel ok.

I had my cervical nerve stimulator surgery on Dec. 21st. Everything went well and I was home later that day, however, I got super sick Tuesday. I had a slight headache all day and threw up my lunch. After I logged off work for the day (working from home), I laid down and slept for about an hour. After I got up, I still had a headache but decided to try and eat something. That didn’t go too well. I ate about half my dinner and then threw that up too! My head started to feel like it was going to split open. I threw up several more times that evening and twice I got up after going to bed and threw up. About 11pm I realized I may be having a spinal headache. That is where there is a hole in the epidural space and spinal fluid is leaking out. I wish I had thought about it earlier. I might have tried to find someone to take me to the ER. I was that sick. I don’t remember ever throwing up that hard. I felt like I was puking my stomach lining. Seriously, it was straight acid. Any who, I survived and I felt a bit better the next day. I still had a little headache but it got better as the day went on. This was Wednesday. I had to go into the cancer clinic for blood work to make sure everything was A-OK for PRRT. It is so it’s a go!

I have two incisions from my nerve stimulator implant. One is right between my shoulder blades and the other is on my left side. It’s very sore but getting better. I go in this Wednesday for my follow-up. I hope they can take the steri-strips off. They’re starting to itch but aren’t coming off much on there own!

I’ll let you know how PRRT, round one, goes after the 7th! Fingers crossed I won’t get too nauseous or throw-up!

P.S. I ordered me a t-shirt from Amazon that say’s “Hug me, I’m Radioactive”! Can’t wait to wear it!!!

Surgery blues

I’m scheduled for my Cervical Nerve Block implant on Dec. 21st. Sooner than I though it would be. I usually don’t get too nervous before surgeries and procedures but this time I am. What with my tumors being more “active” and my constant flushing episodes, I’m worried about Carcinoid Crisis.

Carcinoid crisis causes a severe episode of flushing, low blood pressure, confusion and breathing difficulty. Carcinoid crisis can occur in people with carcinoid tumors when they are exposed to certain triggers, including anesthetic used during surgery. Carcinoid crisis can be fatal.


Read that last sentence again….

Yup, fatal. Carcinoid crisis can be fatal. My concern is really that this surgery is scheduled for the day before my Lanreotide shot! I wish it was the day after. You might ask, why not go get it a day early? Great question. The answer is super simple. Insurance won’t pay for it even one day early! That’s an $18,000 shot. Not something I can afford to pay out of pocket.

My best plan is to talk to the anesthesiologist right before surgery about have a plan in case of CC (Carcinoid Crisis. There is a protocol for CC.

Treatment of a carcinoid crisis should consist of blocking the release of the mediators from tumor tissue by administering somatostatin analogs, such as octreotide (20,23). In the acute situation, 100–500 μg of octreotide can be safely administered intravenously 

I’ve never had issues before but since my tumors are being naughty, I need to make sure they take precautions. I wish it was standard protocol to meet with the anesthesiologist a day or two before and not as they are wheeling you into the operating room (ok, probably right before).

I’m waiting for a call from the hospital on when to go in to get a Covid and MRSA test. Both are nasal swabs. I’ve had the MRSA test before and it’s no big deal but I’ve heard some people say the Covid test feels like a brain swab.

I’m also waiting for insurance approval for PRRT. I don’t know how long that will take. I was hoping to get my first treatment before my January shot. They like to do it right before so the tumors are “hungry” for that radioactive peptide!

With Christmas less than two weeks away, I want to wish everyone a very Merry and I hope you can enjoy the Holiday even with the COVID restrictions.

All my best, Sharon